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Oxford Handbook of Clinical Immunology and Allergy

Oxford Handbook of Clinical Immunology and Allergy

Death, Dying, and Social Differences

Death, Dying, and Social Differences

A Public Health Perspective on End of Life Care

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9780199599400
 

Worldwide, more than 50 million people die each year and it is estimated on the basis of the conditions leading to death that up to 60% of them could benefit from some form of palliative care. It is a public health challenge to ensure that these people can access good palliative or end-of-life care. Pursuing good population health essentially also implies striving for a 'good enough death' and a good quality of care at the end of life. Safeguarding a good quality of the end of life for patient populations for whom it is appropriate requires a public health approach.

In most developed countries ageing populations that increasingly die from chronic diseases after a prolonged -often degenerative- dying trajectory make up the public health challenges for palliative care. The very large baby boom generation will soon reach old age and can be expected to pose strong demands regarding the circumstances and care at their end of life. Only by applying a public health approach to palliative care (instead of individual patient perspectives), can societies successfully help to organize and plan end-of-life care in accordance with these aspirations.

A Public Health Perspective on End of Life Care presents a synthesis and overview of relevant research and empirical data on the end of life that can bear a basis for a more systematic 'public health of the end of life'. The book focuses on population health, rather than clinical interventions or other aspects of individual health, and discusses studies using different methodologies (not only epidemiological research). The focus is on the quality of the end-of-life of populations, in particular from social sciences, environmental sciences, and humanities perspectives.

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Table Of Content

PART I: INTRODUCTION
1: Applying a public health perspective in end-of-life care, J Cohen & L Deliens
PART II: CLINICAL AND SOCIAL CONTEXT OF DEATH AND DYING
2: Place of death and end-of-life care, ST Tang & C-H Chen
3: Circumstances of death and dying, I Higginson
4: End-of-life decisions, A Van der Heide & J Rietjens
5: Economic and health related consequences of individuals caring for terminally ill cancer patients in Canada, K Fassbender
PART III: END-OF-LIFE CARE: PROVISION, ACCESS, AND CHARACTERISTICS
6: Aggressive treatment and palliative care at the end of life, Wentlandt K & C Zimmerman
7: Access to palliative care, G Grande
8: Communication between patient and caregiver, L Emanuel
PART IV: END-OF-LIFE CARE SETTINGS
9: Palliative care in primary care, L Van den Block
10: Palliative care in institutional long-term care settings, JT Van der Steen, MR Helton, PD Sloane & MW Ribbe
11: Palliative care in hospitals, AS Kelley, DJ Fischberg & RS Morrison
PART V: INEQUALITIES AT THE END OF LIFE: UNDERSERVED GROUPS
12: Non-cancer patients, J Addington-Hall & K Hunt
13: Palliative care for the older adult, K Brazil
14: A public health framework for pediatric palliative and hospice care, K Hexem & K Feudtner
15: End-of-life care for patients with intellectual disabilities, I Tuffrey-Wijne, A Wagemans & L Curfs
16: End-of-life care for people who live in rural or remote areas versus those who live in urban areas, D Wilson & D Mohankumar
17: Social inequalities at the end of life, J Koffman
PART VI: END-OF-LIFE CARE POLICIES
18: Design, implementation, and evaluation of palliative care programs and services with a public health who perspective, X Gómez-Batiste, J Espinosa, MP Gonzalez Olmedo, M Martínez-Muñoz, C Lasmarias, A Novellas, E Beas, J Porta, J Trelis, C Calle & J Stjernsward
19: Public health policy regarding end-of-life care in sub-Saharan Africa, J Downing & R Harding
20: Palliative care in the global context: understanding policies to support end-of-life care, D Clark
21: The importance of family carers in end-of-life care: a public health approach, A Kellehear
PART VII: Conclusion
22: Conclusions, L Deliens & J Cohen

Publish Date 19 Jan 2012
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